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FATHER AND MUM BATTLE OVER BABY’S LIFE SUPPORT

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Doctor's want to take Baby RB off the ventilator which is keeping him alive

Monday November 2,2009

By Tom Morgan

A FATHER is fighting a hospital’s attempt to withdraw support that is keeping his baby son alive, it emerged yesterday.

Doctors want to take the one-year-old, who was born with a rare neuromuscular condition, off a ventilator which allows him to breathe.

The hospital is taking its action to the High Court today and is reportedly supported by the child’s mother.

She is separated from the father, whose lawyers are opposing the case.

The boy, known as Baby RB, was born with congenital myasthenic syndrome, a muscle condition which severely limits limb movement and the ability to breathe independently. He has been in hospital since birth.

Lawyers for the father argue the baby’s brain is unaffected by the condition and that he can see, hear and feel and recognise his parents.

He is also apparently able to play with toys.

Christopher Cuddihee, a solicitor acting for the father, said: “This is a tragic case. The father feels very strongly that Baby RB has a quality of life that demands the trust should continue to provide life-sustaining treatment.

“The father clearly adores his son and hopes to demonstrate to the court that the trust’s application should be rejected.”

The parents cannot be identified for legal reasons.

There are an estimated 300 syndrome sufferers in the UK. Severity varies.


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